In 2005, Lee Durdon, frustrated and overwhelmed with her many Sjögren’s symptoms and the lack of resources and information for patients in Canada, volunteered to be an Ontario support group leader with the U.S. Sjögren’s Syndrome Foundation.
She organized support group meetings and educational seminars. With the support of her family and doctors, she reached out to patients and professionals and realized that more than local support was needed.
Determined to make a difference for newly diagnosed patients and people living with the disease, in 2006 Mrs. Durdon formed the Sjögren’s Society of Canada to improve conditions for patients and to encourage research into this complicated and overlooked disease in Canada.
In November, 2008, the Sjögren’s Society of Canada became a Canadian nonprofit organization. Our Federal Registered Charity number is 81858 8956 RR0001.