National Patient Conference


SJOGREN’S SYNDROME: An Immune System Gone Wild

Saturday, May 11, 2013

8:30 am – 4:45 pm

Sheraton Centre Toronto Hotel

Willow Room

123 Queen Street West, Toronto, ON M5H 2M9

For a printable conference patient registration form, click here.

PHYSICIAN online registration form | Printable Version

DENTIST online registration form | Printable Version

HYGIENIST online registration form | Printable Version

For a printable conference overview

7:45–8:30 am Registration, Exhibits and Breakfast
8:30–8:45 am Opening Remarks Arthur A. M. Bookman, MD FRCPC, MD Program Director, Division of Rheumatology, University of Toronto; Chair, Conference Planning Committee; Co-chair Medical Advisory Committee, Sjogren’s Society of Canada Lee Durdon, President and Founder, Sjogren’s Society of Canada (SjSC)


8:45–9:25 am “Overview of Sjogren’s Syndrome”, Arthur A. M. Bookman, MD FRCPC, Rheumatologist

Dr. Bookman will explore the different aspects of Sjogren’s and enrich your understanding the syndrome. Dr. Bookman will incorporate results from the Toronto Multidisciplinary Sjogren’s Syndrome Clinic at Toronto Western Hospital where he is the Coordinator. Dr. Bookman is Associate Professor of Medicine, University of Toronto. He is President and Chairman of the Board of The Journal of Rheumatology; former Founder and Chair, of the Canadian Arthritis Society Medical Advisory Committee; former President of the Canadian Rheumatology Association and serves as Co-Chair of the Sjogren’s Society of Canada Medical Advisory Board.9:25–10:15 am “The Oral Management of The Sjogren’s Patient”, Athena Papas, D.M.D., Ph.D., Oral Medicine SpecialistDr. Papas will discuss how to diagnose Sjogren’s early, recognize erosion early and treat it, and prevent mucosal lesions and cavities. Dr. Papas is the Erling Johansen Professor of Dental Research and the Head of the Division of Oral Medicine and Public Health Research at Tufts University School of Dental Medicine in Boston, Mass. She attended Harvard for DMD and MIT for her PhD. With expertise in the oral healthcare of the elderly and the medically compromised, Dr. Papas has devoted most of her professional career to this area of study and treatment. She specializes in the care of Sjogren’s syndrome, xerostomic, geriatric, and cancer and bone marrow transplant patients. Dr. Papas has been the principal investigator of over 40 clinical trials and co-investigator of many more studies. She was past recipient of the International Association of Dental Research (IADR) Pharmacology-Therapeutics-Toxicology Research Award and currently past- President of PTT. She has served on the ICDAS committee and INCNARA II conference to study caries. She served on the Medical Advisory Board of the U.S. Sjogrens Foundation (SSF)and is a member of the Oral Working Group to develop SSF Clinical Practice Guidelines.

10:15–10:55 am “Dry Eye – Tear Dysfunction: Are we making any Progress in Diagnosis and Treatment?” Bruce Jackson, M.D. FRCSC, Ophthalmologist

Research continues to better define the inflammatory mechanisms involved in dry eye disease and the involvement of the corneal nerves. As a result new tests are emerging to measure inflammatory markers which may help predict response to certain treatment strategies. Dr. Jackson is Professor, Department of Ophthalmology, University of Ottawa Eye Institute and a reviewer for many ophthalmic journals and a consultant to the Health Protection Branch, Bureau of Human Prescription Drugs, Health Canada. He presents clinical and research studies at all major meetings and is an invited speaker at many international symposia. He has published numerous peer reviewed articles and a number of chapters related to refractive surgery, dry eye disease blepharitis and new therapies. He was the founder and former chair of the Canadian External Disease and Cornea Society, and past Chairman of the Association of Canadian University of Professors of Ophthalmology.

10:55-11:10 am Break 11:10–11:50 am “Pregnancy in Patients with Sjogren’s Syndrome and other Autoimmune Diseases” Ann Parke, MD, Rheumatologist

Dr. Parke’s talk will focus on the effect of Sjogren’s Syndrome and other Autoimmune diseases on pregnancy, the effect of pregnancy on Sjogren’s syndrome and other Autoimmune diseases, and management of Sjogren’s Syndrome and other autoimmune diseases during pregnancy. Dr. Ann Parke is Professor of Medicine, Division of Rheumatic Diseases at the University Of Connecticut School Of Medicine and an expert in Sjogren’s syndrome, rheumatoid arthritis, antiphospholipid syndrome, systemic lupus erythematous, spondylitis as well as pregnancy in patients with connective tissue diseases. Dr. Parke has published over 130 scientific papers, abstracts, and numerous articles for peerreviewed journals, including Arthritis and Rheumatism and The Journal of Rheumatology. She serves on the International Sjogren’s Syndrome Scientific Committee and has hosted one of the International Scientific and Medical Symposiums on Sjogren’s. Dr. Parke is a Sjogren’s Syndrome Foundation (U.S.) Medical and Scientific Advisory Board member, and Co-chair, Medical Advisory Board, Sjogren’s Society of Canada and served on the education boards of the American Journal of Clinical Research and Lupus.

11:50–12:30 pm: “Dental Implants and the Sjogren’s Patient”, Izchak Barzilay, Cert. Prostho., M.S., FRSC(D), Prosthodontist

Trying to maintain ones teeth in the hostile oral environment of a Sjogren’s patient is extremely difficult. Dental implants provide an alternative to conventional treatment options by providing fixed or removable support for teeth without the negatives of tooth decay. This presentation will discuss advances in dental implant therapy as they relate to the dry mouth situation. Dr. Barzilay is the Head of the Division of Prosthodontics and RestorativeDentistry, Mt. Sinai Hospital, Toronto, ON; Assistant Professor, University of Toronto; Adjunct Professor, Division of Prosthodontics of the Eastman Department of Dentistry, University of Rochester, Rochester, NY; Professor, George Brown College of Applied Arts and Technology, Toronto, ON; Prosthodontic Examiner – Royal College of Dentists of Canada; Past – President of the Association of Prosthodontists of Canada; SjSC, Medical Advisory Board.

12:30-12:35 pm Announcements
12:35-1:20 pm Lunch, Exhibits

1:20–2:00 pm “Measuring the Impact of Sjogren’s Syndrome on Quality of Life”, Susan Abbey, MD, Psychiatrist

Sjogren’s Syndrome induces more than dryness, and more than mouth and eye damage. It is a systemic illness with a very overactive immune system, affecting quality of life. This talk will discuss how the physical and emotional qualities of life in Sjogren’s Syndrome are measured; what factors contribute to disease intrusiveness; and Sjogren’s Syndrome issues that affect patient satisfaction with the medical profession. Dr. Abbey is the Program Head, Medical & Surgical Psychiatry, University Health Network, Toronto General Hospital.

2:10–3:10 pm Round Table Discussions: Attendees rotate at timed intervals to sit and speak with the Experts

Objectives: Attendees will be able to clarify the questions about Sjogren’s Syndrome that are personally relevant. Medical caregivers and lay people with Sjogren’s will appreciate perspectives of one another.

3:10-3:25 pm Break

3:25–3:55 pm “Taste and Smell in Sjogren’s Syndrome” Miriam Grushka, M.Sc., D.D.S., PhD, Oral Medicine Specialist

This presentation will discuss what is known about changes in taste and smell in Sjogren’s Syndrome. The etiology of these changes and treatment strategies will also be reviewed. Dr. Grushka is a Diplomate with the American Board of Oral Medicine; a Diplomate, American Board of Orofacial Pain. She has published numerous scholarly articles and book chapters and has delivered numerous presentations on topics such as Burning Mouth Syndrome and the treatment of dry mouth in Sjogren’s. Dr. Grushka is a former Clinical Instructor at Yale University School of Medicine and Dentistry and University of Florida with Dr. Linda Bartoshuk a distinguished taste researcher and was first to coin the term “supertaster’. Sjogren’s Society of Canada Medical Advisory B oard Member. Dr. Grushka worked in Germany with Dr. Thomas Hummel, a world renowned researcher in taste and smell.

3:55–4:35 pm “Artificial Tear Products – How to Choose”, C. Lisa Prokopich, OD, M.Sc., Optometrist

While anti-inflammatory therapies have radically changed how we treat ocular surface disease, artificial tears remain a very important piece of the comfort and healing puzzle in dry eye disease. There are a plethora of products available and almost as many recommendations about which one is best. Not unlike every other therapy, there are general rules for treatment choices but are also wide variations in patients’ individual responses to these drugs. We will discuss the available tears and what features to consider in Sjogren’s disease. Dr. Prokopich is Clinical Professor, School of Optometry & Vision Science, University of Waterloo. She is Head of the Ocular Health Clinic at the University of Waterloo where she has a significant practice of patients with severe ocular surface disease. She has served on the Board of the Acoustic Neuroma Association of Canada and is Vice-president of the Sjogren’s Society of Canada. She has lectured internationally and has authored and edited textbook chapters and peerreviewed articles in the management of ocular diseases.