Share Your Story with the Government

Share Your Story with the Government

Send your story directly to provincial and/or federal representatives.

Include the following information in your letter:

  • Explain why you are contacting their office.
  • Indicate that you live in their jurisdiction.
  • Define Sjögren’s syndrome briefly and include:
    • The Canadian Arthritis Society estimates that Sjögren’s syndrome affects up to 1 in 70 people or 430,000 Canadians.
    • 9 out of 10 patients are women.
    • Sjögren’s syndrome is one of the most prevalent autoimmune diseases.
    • It can take 5 – 9 years to be diagnosed.
    • Many different specialists are needed to treat you and it is difficult to diagnose and is sometimes misdiagnosed.
  • Share your story and how it has affected you, your family, work and quality of life. Personalize your writing style and be brief.
  • Discuss the need to increase the level of funding and research into Sjögren’s Syndrome.
  • Tell the representative that more information can be obtained from the Sjögren’s Society of Canada, include our address and website information.

Include the following if applicable to you:

  • If a particular medication has helped you, explain why and how.
  • If you are currently benefiting from a medication that is under review by Health Canada and discuss expediting the drug approval process.

Summarize your letter and thank the representative.

Follow-up by mailing a letter of thanks.

Notify the Sjögren’s Society of Canada about your efforts.

Click here to locate your federal representative.

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