Story Form

Share Your Story

The story you are generously sharing will be used by the Sjögren’s Society of Canada to advocate on behalf of you and other Sjögren’s patients to policy makers, funding agencies and the public. Personal stories have a tremendous impact and are an integral part of advocating for improvements for medical care, increasing treatment options available, research and funding.

    Your Name (required)

    Email Address



    Postal Code

    Home Telephone

    While writing your letter below, please remember the following:

    • Please be as brief as possible.
    • Personalize your writing style.


    Please include information about the following, if applicable:

    • If a particular medication has helped you, explain why and how.
    • If you are currently benefiting from a medication that is under review by Health Canada and discuss expediting the drug approval process.

    Your Story

    How has Sjögren’s syndrome affected you, your family, work and quality of life? Please explain.

    Your Ideas

    Feel free to include ideas that you feel would benefit your care, treatment, research and improve your quality of life.