Events

Canadian Sjögren's Awareness Month

July is Canadian Sjögren’s Awareness Month!

The Sjögren’s Society of Canada is proud to declare that July is Canadian Sjögren’s Awareness Month! Every day during the month of July we post information about Sjögren’s on Facebook and Instagram. The focus of our campaign is to spread the word about our unknown disease to the general public, health care professionals and those people who have not yet been diagnosed. We also recognize World Sjögren’s Awareness Day on July 23rd, the birthday of Dr. Henrik Sjögren who first discovered Sjögren’s.

National Walk for Sjögren's

Our 4th Annual National Walk for Sjögren’s will be held on September 19, 2026. The event will feature walks in cities and neighbourhoods across Canada.  Join us in 2026 and help us to continue to Make Strides for Sjögren's! 

We have several objectives for our Walks. First and foremost, we want to increase awareness about our unknown disease. We do this by talking about the Walk for Sjögren’s with our friends and family members. We are also raising funds for the Sjögren’s Society of Canada so that we can continue to strive to improve the lives of patients in Canada.

Local Walks for Sjögren’s may include expert speakers, patient testimonials, sponsor, door prizes and of course an easy stroll in a park or your neighbourhood. Set a fundraising goal, bring a team, and win prizes for the amount you raised.

If you would like to organize a Walk or help with planning the Walk in your community in 2026, contact the SjSC today!

Members Only Virtual Town Halls

The Sjögren’s Society of Canada is excited to announce that our Members Only Virtual Town Halls are back for 2026!

We will welcome four Sjögren's experts this year who will give a brief presentation about topics which are informative and timely for our members. The focus of the town halls is to provide plenty of time for members to ask questions.

We are pleased to offer exclusive sessions for our members featuring guest speakers in May, June, September, and November.

Details about our speakers and registration information will be shared here. We look forward to having you join us for these informative events.

SjSC members can log in to their Member Portal on our website to watch recordings of all of our past Town Halls.

Our next Town Hall is scheduled for September 2, 2026 and will feature Lauren Stiles, President and co-founder of Dysautonomia International.

Lauren has served in leadership positions on several government councils, non-profit boards and professional associations.  

She developed postural orthostatic tachycardia syndrome (POTS) symptoms overnight at the age of 31.  After a relentless two-year quest to find an underlying cause for her symptoms, she was finally diagnosed with autonomic neuropathy caused by Sjögren's. 

Since co-founding Dysautonomia International in 2012, Lauren has been an outspoken advocate for individuals living with autonomic disorders. She has lectured on autonomic disorders during U.S. Congressional Briefings and at the National Institutes of Health, Harvard Medical School, Duke University, and numerous other medical schools and hospitals.  

In 2018, Lauren joined the faculty of Stony Book University School of Medicine as a Research Assistant Professor of Neurology, where she focuses on autonomic disorders research.

Stay tuned for more info on how to register for this event.

National Patient Conference

The Sjögren's Society of Canada was pleased to hold our 19th Annual Sjögren’s National Patient Conference! This year, we went Back to Basics with a virtual event designed to inform, connect, and empower. Whether attendees were searching for a diagnosis, newly diagnosed, or a long term Sjögren’s patient, we learned from leading experts, gained the latest insights, and picked up practical tips—attendees also had opportunities to ask questions. Thank you to all of you who joined us for a day of learning and connection.

2026 Featured Expert Presenters:

All Conference registrations were entered into our draw for some great door prizes thanks to our donating sponsors!