Living with Sjögren’s involves far more than managing physical symptoms—it can also create significant emotional and psychological stress. Research shows that people with Sjögren’s often face a wide range of stressors, including physical challenges such as pain, fatigue, and inflammation; psychological stress linked to both real and perceived threats; and social stress connected to relationships, work, and support systems.
A 2016 survey of people living with Sjögren’s highlighted common symptoms like dry eyes and dry mouth, but also frequent experiences of fatigue, joint pain, sleep difficulties, brain fog, and forgetfulness. Individuals newly diagnosed often report a greater impact on their overall mood, as the early years of the disease require major adjustment.
Chronic illness also brings emotional strain. People with Sjögren’s may experience anxiety, sadness, frustration, or demoralization as they balance the demands of the illness with everyday life—finances, family responsibilities, work, and social relationships. Many also face the added stress of navigating the medical system, from long waits and inconclusive tests to appointments with healthcare providers who may not fully recognize the daily impact of the disease.
Despite these challenges, resilience plays an essential role. While emotions may fluctuate, developing new coping strategies helps individuals adapt and find ways to manage both the physical and emotional aspects of living with Sjögren’s. The ability to cope isn’t fixed—it evolves as people learn, adjust, and discover what best supports their well-being.
*summary courtesy of The Sjögren's Book, Fifth Edition, Daniel J. Wallace, MD
How to manage stress:
- Build a support system: Connect with others who have Sjögren's through support groups to share experiences and coping strategies.
- Practice a healthy lifestyle: Ensure you get adequate sleep, eat a nutritious diet, and stay physically active to manage both physical and mental well-being.
- Use stress-reduction techniques: Incorporate stress-reducing activities into your daily routine, such as walking, yoga, meditation, or listening to music.
- Seek professional help: Consider talking to a mental health provider for counseling, therapy, or medication to manage anxiety and depression.
- Work with your doctor: Your rheumatologist can help track patterns between your stress levels and symptom flare-ups and can provide referrals to other specialists.
